Getting ready to travel out of the country with our babe next weekend ... not going to lie, I'm pretty nervous . Trying to think of all the essential things I will need to pack for two weeks and worrying about how to keep her happy on the plane. Any air travel tips for a rookie?? All advice welcome!
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Hola mis amores, sábado helado por acá, fue un poco complicado hacer esa foto, mi guatita no me permite una maior movilidad . A tranquilidade no olhar de quem sofreu pra fazer uma foto sentada, a barriga já não me permite malabarismos em meus looks do dia! Hahahaha
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"If your baby is going to die and it doesn't have to, it shouldn't matter how much money you make." -Jimmy Kimmel, May 1, 2017
On June 24, 2014 my daughter Kennedy Pearl was born. Her heart rate dropped during a contraction and never came back up. She was born via emergency c-section 15 minutes later. For 20 minutes Kennedy was without oxygen. She was then intubated, heavily sedated, and flown to Arkansas Children's Hospital in Angel One to undergo a 72 hour head cooling.
Medicaid saved my daughter's life. I had done everything right; I had regular prenatal check-ups, took my vitamins, never smoked, drank, or did drugs, ate healthy, etc. Tanner and I were 2 full-time college students about to start our senior year. Tanner was also working full-time. We didn't have enough money to even pay for the helicopter ride that was crucial to stopping the brain damage from progressing, let alone the next 10 days we would spend in the NICU. But we didn't have to worry. Because Medicaid saved Kennedy.
Kennedy suffered from Hypoxic Ischemic Encephalopathy, HIE for short. Most babies won't survive. If they do, cerebral palsy, learning disabilities, seizures, neurodevelopmental and developmental delays, and cognitive and motor impairments are common results. The brain damage that resulted from Kennedy's birth is irreversible. But the cooling cap helped stop the damage from progressing. However, we still don't know the extent and effects of Kennedy's brain damage.
Right now we know that Kennedy has an articulation delay, weak-oral facial muscles that make it difficult for her to eat and talk, and this past month we found out she has sensory issues. Kennedy attends speech therapy 4 times a week for an hour each session. She has made amazing progress in her vocabulary. Food therapy has helped her strengthen her mouth muscles enough for her to actually chew her food, reducing her risk of choking. A recent evaluation for her sensory delays qualifies her for occupational therapy for 180 minutes a week, which she'll start as soon as possible.
My daughter was born with a pre-existing condition. Her quality of life has drastically improved thanks to Medicaid and the ACA. ...